Chloe’s Story

In November 2024, Chloe’s mom was traveling for work and got a call from her husband saying Chloe’s urine was bright yellow. He took her to the ER and they found that her liver levels were extremely high. At this point, doctors said she had autoimmune hepatitis. Fast forward to March 2025 and Chloe was getting better! But then, suddenly, her cell counts tanked and her bone marrow stopped producing. This caused her to begin going to Duke weekly for transfusions and blood draws. She has continued these weekly visits since then. Her mom, Neda, quit her job to care for Chloe and their lives have been significantly altered, not being able to go out as much, travel or attend school.

Plans were for Chloe to receive a bone marrow transplant this summer; however, those plans have been put on hold for now. Chloe is now being treated for a rare and serious condition called Evans Syndrome. It has been so taxing on the family trying to find ways to bring up her platelets and hemoglobin. Chloe is still receiving weekly platelet transfusions, blood transfusions and different medication medicine combos.

The time she has spent in and out of the hospital has made her more shy but through it all Chloe remains strong, brave & fearless! She loves playing with her big sister, Charlotte, and being outside. Chloe’s shirt is an ode to her parents’ military background and her strong willed, courageous spirit!