Everly’s Story

Everly was diagnosed with Neurofibromatosis Type 1 (NF1) at 11 months old after months of navigating developmental delays and countless appointments. Like many NF families, our journey began with uncertainty and learning an entirely new medical world while trying to understand what this diagnosis would mean for her future.

Almost a year later, doctors discovered that Everly had developed an optic pathway glioma. She is currently undergoing treatment, which is expected to continue through January 2027. While this journey has brought many challenges, Everly continues to face it with incredible strength and resilience.

She is full of personality—she loves music, dancing, imaginative play, and anything with a little sparkle. She keeps us on our toes, makes sure things are always done her way, and has a sense of humor that shines even on the hardest days. Everly lives her life boldly and unapologetically as herself, and reminds us every day what it truly means to “Be Bold. Be You.”

- Michelle Kimball, Everly's mom