Kaya’s Story

A few months before Kaya's first birthday, we noticed a couple of bumps appear on her skin. Our pediatrician initially believed it was a harmless skin condition that would likely resolve on its own. However, when we returned for her 12-month visit, the bumps had spread, grown, and become more aggressive in appearance. We were quickly referred to a pediatric dermatologist who recommended a biopsy, and soon after we learned about Langerhans Cell Histiocytosis (LCH).

Since her diagnosis, we’ve been through a whirlwind of blood tests, X-rays, ultrasounds, PET scans, and ultimately surgery to place a central line for chemotherapy treatments. Kaya has been a champion through it all— consistently earning compliments for being the happiest and most easygoing baby during the many medical procedures and weekly visits to the infusion clinic.

In the 6 months since her diagnosis, Kaya has begun walking, talking, and showing her steadfast determination to be an independent toddler. Her stethoscope, mouth swabs, and syringes have become some of her favorite “toys,” and her nurses, case manager, and oncologist have all become regulars in her growing village. Kaya is always watching what others are doing, learning and imitating how to do things on her own, and she’s determined to solve any seemingly impossible challenge — whether it’s figuring out how to open and close the baby gates or communicating with our Alexa device so she can “dance-dance” to the music. She’ll be entering a new chapter as a big sister in a couple of months, and we know her fierce resilience and strong-willed curiosity will make her an amazing role model.

We are incredibly grateful for the community, care team, and loved ones who have surrounded our family with unwavering support. Kaya’s journey continues, but she reminds us every day just how much strength can live in such a small and determined person.

- Teshika (Kaya’s Mom)